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August 2016 Update

August 2016 Update So, it has been a little while since I have posted an update.  A little bit has been going on since then. Back in April of this year we had to give up our house because we didn't have SSDI or LTD approved and we were living off of savings.  We were...

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Psychogenic Non-Epileptic Seizures

Psychogenic Non-Epileptic Seizures In this post I am going to talk about my most recent diagnosis of Psychogenic Non-Epileptic Seizures, also referred to as Non-Epileptic Attack Disorder (NEAD) for those in Europe.  This one has been kind of scary for me.  It has...

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May Update

May Update So to start my May update, my ability to go to the Centre for Neuro Skills went away just like that.  I was told I was approved a little over a week ago and was getting ready to buy plane tickets, and everything, when a few days later we talked to someone...

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Viral Meningitis Week 2016

Viral Meningitis Week 2016 I have a rare form of viral meningitis called Mollaret's Meningitis.  Since this is viral meningitis week, sponsored by Meningitis Now, I figured I would share my meningitis story. My first hospitalization with viral meningitis was in July...

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April Update

April Update So here is my April update.  It has been hard to get to the computer to do an update because I have been able to spend my time with my wife and taking care of my kids.  Since my last update I have finished neuropsychological testing.  We were supposed to...

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Birthday Positivity

Birthday Positivity This past weekend I had my birthday.  It was really great, but I will get to that shortly.  For the past two to two and a half weeks the depression medicine has actually been starting to work.  I slowly started to have less days that I was super...

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Personal Health Records

Personal Health Records (PHR) are defined as: "A personal health record ( PHR ) is an electronic application used by patients to maintain and manage their health information in a private, secure, and confidential environment." ...

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2016 Brain Injury Awareness Day

2016 Brain Injury Awareness Day In honor of brain injury awareness day, during brain injury awareness month, I thought I would write this blog about my brain injuries and how they have affected me and my family. My first brain injury was at the age of 5.  I was...

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Today was a good day

Today was a good day (Queue Ice Cube) I am still having all of my issues, but the reason today is a good day is because I have some answers and some confirmations. The first amazing bit of information we got today was a name to the recurrent viral meningitis I have...

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More Denials and Cognitive Issues

So, this past week we got more denials, this time from long-term disability.  We are waiting for the official paperwork, but they called and talked to Jessica about it.  They say I wasn't under appropriate care for my psychological issues and that there isn't enough...

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Get help when you need it – Last Day

Please get help when you need it! (cont’d) So on the last day I woke up, and after being almost anxiety free the entire weekend, had some anxiety cropping back up.  I was anxious because I had seen someone else get too excited about the possibility of leaving while I...

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