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ME/CFS

I am going to start by asking you to take the hour and half needed and watch the documentary Unrest.  This movie visually explains the life I am currently living and it is important that we create as much awareness as possible to get the answers we desperately need.  ...

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Credit Security Freeze

Due to the recent breach at Equifax, I thought I would share information with everyone on how to put a security freeze on your credit reports.  A credit freeze basically stops anyone from checking your credit.  If you were to decide you wanted to get a loan, mortgage,...

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Part-time Wheelchair Use

I felt it was very important to address part-time wheelchair use to help raise awareness for this need in our society. My primary diagnosis at this point is Mollaret’s Meningitis (recurrent viral meningitis).  I believe my multiple brain injuries as a child made me...

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2017 FND Awareness Day

Today is FND awareness day.  I was diagnosed with FND, and I believe it was caused by my rare disease Mollaret's Meningitis.  It has been a huge struggle trying to access apprpriate care for this condition for several reasons.   There is not...

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2017 Brain Injury Awareness Month

In honor of brain injury awareness month, I thought I would write this blog about my brain injuries and how they affect me and my family. I recently discovered that what I thought was my first brain injury, was actually my second.  My Dad recently found pictures of me...

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Rare Disease Day 2017

My rare disease is called Mollaret's Meningitis and is the disease I am raising awareness for on this rare disease day 2017.  Mollaret's Meningitis is a rare, and poorly understood, disease that is believed to be caused by the herpes viruses.  It is believed to attack...

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Life with Chronic Illness

Life with Chronic Illness I have been quite busy lately founding the Mollaret's Meningitis Association (www.mollarets.org).  Our mission is to support those affected by Mollaret's Meningitis and help fund research to find a cure.  Our vision is a world free from...

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How Idaho Law Is Affecting My Life

How Idaho Law Is Affecting My Life I am writing this blog post to help the Idaho elected officials know how Idaho law is affecting my life and the lives of Idahoans. I have tried to do everything you are supposed to do in life.  Worked in law enforcement, security,...

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Giving Tuesday 2016

Giving Tuesday 2016 Below are some of the organizations that have helped me along my health journey.  Please consider supporting some or all of them.  Thanks! Rare Disease (Mollaret's Meningitis) Global Genes Is helping our Mollaret's Meningitis Support Group organize...

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Living With Chronic Illness

Living with chronic illness if very difficult.  I haven't had the energy to do much of anything lately and my fatigue is getting worse along with most of my symptoms.  I thought it was time to write about what it's like to live with chronic illness. Major Health...

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Global Genes and Mollaret’s Research

Doing research online trying to find some doctors that might be interested in helping our Mollaret's Meningitis support group get more research into our illness, I found Global Genes, www.globalgenes.org. Through their recommendations I was able to get in contact with...

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August 2016 Update

August 2016 Update So, it has been a little while since I have posted an update.  A little bit has been going on since then. Back in April of this year we had to give up our house because we didn't have SSDI or LTD approved and we were living off of savings.  We were...

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